What is the Patient-Centered Outcomes Research Institute? | Core Benefits Group

Posted on: Wednesday, July 17, 2013

It often seems as though the more you know about the Affordable Care Act, the more you need to learn.  Take, for example, the Patient-Centered Outcomes Research Institute, or PCORI. We know that one of the big goals of The ACA is much greater attention and focus on preventative care and wellness, as well as greater understanding of how patients can take charge of their own medical decisions. To this end, the government has established PCORI.

PCORI is a nonprofit corporation consisting of a 21-member Board of Governors.  Duties of the PCORI include identifying research priorities and establishing and carrying out a research project agenda. PCORI’s mission is to help people make informed health care decisions and “…improve health care delivery and outcomes, by producing and promoting high-integrity, evidence-based information that comes from research guided by patients, caregivers and the broader health care community.” 

Patient-Centered Outcomes Research (PCOR) helps people and their caregivers make informed health care decisions by allowing their voices to be heard in assessing the value of health care options. This research answers patient-centered questions such as:

  1. “Given my personal characteristics, conditions and preferences, what should I expect will happen to me?”
  2. “What are my options and what are the potential benefits and harms of those options?”
  3. “What can I do to improve the outcomes that are most important to me?”
  4. “How can clinicians and the care delivery systems they work in help me make the best decisions about my health and healthcare?” 

To answer these questions, PCOR (Source: www.pcori.org)

  • Assesses the benefits and harms of preventive, diagnostic, therapeutic, palliative, or health delivery system interventions to inform decision making, highlighting comparisons and outcomes that matter to people;
  • Is inclusive of an individual’s preferences, autonomy and needs, focusing on outcomes that people notice and care about such as survival, function, symptoms, and health related quality of life;
  • Incorporates a wide variety of settings and diversity of participants to address individual differences and barriers to implementation and dissemination; and
  • Investigates (or may investigate) optimizing outcomes while addressing burden to individuals, availability of services, technology, and personnel, and other stakeholder perspectives.

PCORI is funded through the Patient-Centered Outcomes Research Trust Fund (PCORTF), which was authorized by Congress as part of the Affordable Care Act. It is funded by both the Treasury Department, and small fees assessed on Medicare, private health insurance and self-insured plans. PCORI is expected to receive an estimated $3.5 billion from the PCORTF to fund patient-centered outcomes research through September 30, 2019, the date through which the Act authorizes it to remain in operation. The fees for 2013 are due on July 21.

Do you have questions about the Affordable Care Act? We have a call center which is ready to help you navigate through the maze of complexities in the new world of health coverage. 

Please call 1-877-214-2969. We’re ready to assist you.


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